Chronic fatigue

[Curlygirlie]

Whats you’re regimen for chronic fatigue? Does anyone here have ITP? Or other autoimmune conditions?

 

[Hotlongs]

I am investigating the GLOW stack for multiple reasons including a hope that BPC helps with for this, but I was told SS-31 and MOTS-C helps people with fatigue.

 

[FlowerFairy]

Whats you’re regimen for chronic fatigue? Does anyone here have ITP? Or other autoimmune conditions?

My mom had Cfids. I have Raynaud’s. My sister has Devik’s syndrome. I was using glutathione because I seemed to be getting sick constantly so I went on gluta 2000 mg 7 days/wk. didn’t help w/fatigue, but I didn’t get sick for over a year. Mom died in 2010, and my sister has no interest in peptides because she is fairly healthy ( her description, not mine). Except she has had a resistant UTI for over a month and has recurrent kidney stones and severe anemia to the point of needing transfusions. I need to bug her about how much iron she is taking.. among other things.

 

[lessthanhalf]

Just trying to work out the last bit. If someone is anemic enough to need transfusions it is pretty hard to imagine they are not testing iron levels and advising on iron supplements being appropriate or not?

 

[FlowerFairy]

Just trying to work out the last bit. If someone is anemic enough to need transfusions it is pretty hard to imagine they are not testing iron levels and advising on iron supplements being appropriate or not?

Most doctors advise taking ferrous sulfate; if you’ve had WLS or are older, you don’t make enough stomach acid to absorb it. You need polysaccharide iron complex, and apparently she needs it in a bigger dose than 1 tab 3x/wk. my hematologist advised to take it mwf with at least 200 mg vitamin C each dose when I needed iron infusions last fall. Previously I took it daily without C; I’m coming up on 6 month testing to see if I need to increase to 2 tabs mwf. My sister does not see a hematologist or an endocrinologist, so her iron levels are only checked yearly, which isn’t enough. That’s why it’s low enough to require transfusions. And while she will ask my advice for anyone else, apparently my nursing degrees are not good enough to give HER health advice. It’s frustrating. I have to bite my tongue a lot.

 

[lessthanhalf]

Needing transfusions and testing once a year does not sound like the optimal combination. My daughter does not listen to my medical advice so I do have some idea what that is like. Seems a bit silly to miss school and take panadol for migranes when there are pills that might get rid of it in half an hour, but what would I know.