Anyone out there with Ehler's Danlos syndrome?

[dobermom21]

Would love to connect with others dealing with this disorder, and compare notes on what has helped you - and what hasn't.

I have the hypermobility type, and it's rare to even meet a doctor that's familiar with it.

 

[YoYoFat]

Yup, I have it.

 

[WholesomeApril]

Yes me

 

[WholesomeApril]

Biggest tip is keep strong

 

[deleted.user.16]

I have it

My joints have been extra achy since losing 20 lbs on Reta (they didn't used to lol). Just bought some glucosamine and fish oil yesterday, hope they will do something.

 

[dobermom21]

Would love to connect with others dealing with this disorder, and compare notes on what has helped you - and what hasn't.

I have the hypermobility type, and it's rare to even meet a doctor that's familiar with it.

I just made a new post about this topic in the public square for anyone interested in a peptide/eds community.

Resources and discussion related to peptides and Ehler's Danlos syndrome. [archived internal link]

And this is a new Discord server for this purpose. https://discord.gg/49X7t9HGq

 

[anotherusername]

Yep, me too. Hydration, sleep, putting on muscle, losing fat have all been useful for managing it and have the fastest results. A few years of Pilates was literally career changing when I had a job that demanded a lot of me physically. It was slow progress, but nothing in my life has helped protect my joints better.